Today was just as, if not, more difficult than last night. Noah's blood pressure has been above 100 diastolic ALL DAY LONG. He has only gotten about an hours worth of sleep and has been extremely agitated with a fever as high as 103.5. We have tried PRNs and Tylenol all day and nothing helped.
Aaron left around 5:30 pm to go to his Men's Bible study group and since then Noah had gotten MUCH worse. So bad to the point that I called and asked Aaron to come back. We have tried a new drug called droperidal (I know I did not spell that right! lol) and it seemed to help him. However, about 45 minutes later, his blood pressure came back up. His color is not good... he looks very gray and sickly. That is the best I can describe it. He has been clenching and grinding his teeth and has also started biting his tongue. This concerns me that he may be having seizures but it also can be another sign of withdrawal. I will be asking that they do a head study tomorrow to ease my worry. They have also done a KUB (finally!) and it showed a lot of gas in his intestines and something about his left lower quadrant having a thickening of the intestinal wall. We will know for sure by the morning rounds. Noah's BNP is high... the highest I think it has ever been. This is the blood test that shows heart failure.
This is very scary for Aaron and I. We don't know what to make of this. It is extremely difficult to sleep tonight because we both want to be by Noah's side and make sure he is comfortable and well.
Thank you Lord for Nurse Jaci today. It is nice when you get a nurse that advocates for and with you.
I don't know if I have expressed well enough how critical Noah seems to be right now, but PLEASE PLEASE PLEASE.... pray ... I don't even know exactly what to have everyone pray for, but just pray for comfort all around and restful sleep and safety for Noah.