Tuesday, November 16, 2010
Noah's chest has been closed for 24 hours now! PRAISE GOD!! He is having some issues with his renal sats and blood pressure. The swelling has gone down a lot in his face! He looks more like himself :) He is becoming VERY tolerant to his sedation meds, requiring even more to keep him asleep. I can't wait until we can start weening him off! He had a couple extra doses of lasix (his diuretic) had put off a lot of extra fluid. He has been spiking fevers over night, but I think it is mainly due to his agitation so he has been getting Tylenol.
Over all he is doing good! We just need to keep praying for the usual. Another request added to the prayer list is to get him weened off the epinephrin (the heart function med). That is our next 'moving forward' goal.

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

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He is getting so BIG!!!!
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