Saturday, November 27, 2010
Happy Thanksgiving (a couple days late) EVERYONE!!! Noah is doing pretty good.

Yesterday, Noah had his pacing wires removed... seeing as he was only paced for half a day after his cardiac arrest. Less and less wires and tubes!!! LOVE IT!
The past couple of days, Noah has not required any PRNs, we have been able to keep him happy. We are getting closer to getting him off the Fentanyl and as of today, he is totally off the epinephrine!! His renals are looking better... still on the low-ish side but he doesn't dip to the low 30's anymore. He is still having high temp spikes as high as 39.7*C (103.5*F). When he reaches 39*C we turn on his cooling mat until he is 38*C. Tylenol is not doing ANYTHING, so we have to resort to the cooling mat. I HATE the cooling mat... if he is not watched closely enough, he gets too cold and starts to shiver... but thankfully he has not had any of those episode in the past two days. I think we have got a 'rhythm' going. His vent settings are really low now... Low enough that were he awake enough, they could extubate him! Which, BTW, they are talking about later this coming week! We have started feeding him again. Just 3cc's an hour this time. He has still been retching and throwing up a lot but wee need his gut to move!

Prayer requests:
The continuing progress of weening his off all his sedation meds with no problems.
For Noah to wake up more and be alert and to actually focus on us.
For the unknown health status of his brain... will know more when he is more awake and interacting with us.
For his liver to decrease in size more.
For his toleration of the feeds and that the retching and throwing up will cease.
When it comes time to extubate him, that he will have success and not need re-intubation! AND that extubation time will be SOON!!
For Aaron and I (mostly me!! LOL) to be able to hold Noah again SOON!!!!!!!!
For a miracle on Noah's airways (REALLY focus your prayers on this one specifically as well as the brain function)
Also, that Noah will not require additional closing of the residual VSD's.

I know there are a lot of medical terms in this and you may not know what you are praying for... but God does :) LOL!
Love you all!! And thank you!!!!!!!!!

2 comments:

Anonymous said...

I will keep praying for lil man to get stronger each day. Remember God always make a way

Anonymous said...

Praying for you guys :)

Martha

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

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Dec. 6, 2010

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I got to hold Noah!!

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