Wednesday, November 24, 2010
Right this moment, Noah is getting an ultrasound done on his thigh. His thigh has been getting firmer and larger over the past couple of days so they are having the US done to see if there are any blood clots. It looks and feels like he has a huge charlie horse. Come on, Noah! Seriously... are you going to add this to the mix?!? (Noah is just being Noah.. always has to be a puzzle. I sure wish he came with an instruction manual though!)
We woke up this morning to Noah's eyes WIDE open and responding to our voices! You can tell he is actually recognizing our voices and trying to turn his face towards us and trying hard to focus. He looks more comfortable today. It seems we found a good balance of the drugs he has on board... for now.. *sigh*. His BNP is still high, although I didn't quite catch where it stands today, whether it is higher or lower than yesterday. He pooped twice today!! His belly is a lot less bloated, but his liver is still large. They have gone down on his vent settings (giving him less vent breaths, letting him breathe at his own pace.. just leaving the pressure support the same.). We have stopped his feeds last night due to the vomiting. They are going to leave it off until they hear more bowel sounds.
Ok... so now the ultra sound is done.. just waiting and praying for good results but I want to find out what is going on with his leg!
Over all, today is a little less stressful. Aaron and I will not be going home tomorrow for Thanksgiving. We don't feel comfortable being that far away from Noah when he is so sick. Thankful to the many friends that have offered their closer homes for us. Thank you Erin and Robin for taking us in as your own family tomorrow and letting a couple bums celebrate the Holiday with you! :) We love you!!!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

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