Thursday, November 18, 2010

Extra, extra!! Read all about it!! There's GOOD NEWS!!!

I have been MIA for the past 2 nights. Got a nice break and spent time with my mom and sisters. I love hanging out with them!
While I was away, Noah behaved himself! Yesterday, he had his RA lines pulled. Then, this morning, he got his chest tubes taken out!!!!!! A couple steps closer to me being able to hold him again!!!!! I am SOOOOO EXCITED!!!!!!!!!!!!
They have added clonodine to the mix of sedation drugs. This, I think, is a good sign because it means they will begin weening him off the other more extreme ones! So tonight, they have weened down the Fentanyl (sedation) and his epinephrine (heart function med) and he is doing great. He has had a REALLY good day today! He is a super wiggle worm too... he has been squeezing my fingers and lifting his arms. He has been trying to open his eyes all day too :) He does have some swelling on his eyeball, so please put that on your prayer list. It is nothing too concerning, just looks a little uncomfortable. Another thing added to the list of prayers is his belly. He has gotten extremely bloated in his abdomen and his liver is super huge. His skin is very tight to the point that it hardly has any give when you try to press on it. Poor buddy :/ They have given him 2 glycerin suppositories to help with passing gas, but so far nothing has been happening.
Thank you Jesus for this AWESOME day you have given us!

4 comments:

Duda family said...

Praise God Debi!!!! Praying that the good news continues...

Surviving Triplets said...

AMEN!

Anonymous said...

:) Yea!!!! That is great news! I'm so glad everything is improving!!!! BIG HUGS!

Martha

Anonymous said...

massage his calf muscles...that will get him farting in no time!
Give him a kiss from Auntie Bre ;)

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

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