Tuesday, November 23, 2010

Rough seas ahead...

Today was just as, if not, more difficult than last night. Noah's blood pressure has been above 100 diastolic ALL DAY LONG. He has only gotten about an hours worth of sleep and has been extremely agitated with a fever as high as 103.5. We have tried PRNs and Tylenol all day and nothing helped.
Aaron left around 5:30 pm to go to his Men's Bible study group and since then Noah had gotten MUCH worse. So bad to the point that I called and asked Aaron to come back. We have tried a new drug called droperidal (I know I did not spell that right! lol) and it seemed to help him. However, about 45 minutes later, his blood pressure came back up. His color is not good... he looks very gray and sickly. That is the best I can describe it. He has been clenching and grinding his teeth and has also started biting his tongue. This concerns me that he may be having seizures but it also can be another sign of withdrawal. I will be asking that they do a head study tomorrow to ease my worry. They have also done a KUB (finally!) and it showed a lot of gas in his intestines and something about his left lower quadrant having a thickening of the intestinal wall. We will know for sure by the morning rounds. Noah's BNP is high... the highest I think it has ever been. This is the blood test that shows heart failure.
This is very scary for Aaron and I. We don't know what to make of this. It is extremely difficult to sleep tonight because we both want to be by Noah's side and make sure he is comfortable and well.
Thank you Lord for Nurse Jaci today. It is nice when you get a nurse that advocates for and with you.
I don't know if I have expressed well enough how critical Noah seems to be right now, but PLEASE PLEASE PLEASE.... pray ... I don't even know exactly what to have everyone pray for, but just pray for comfort all around and restful sleep and safety for Noah.

7 comments:

Anonymous said...

Oh Debi! I am so sorry that Noah is struggling! I am praying and will continue to pray through out the day! I wish I had something to say to comfort you right now! But all I can say is that I Love you and God loves you even more! Lean on Him and give Him your worries!
I wish I could be there with you!
Love Your sister AJ

Anonymous said...

((hugs)) praying for all of you today.

Martha

Anonymous said...

Your family is in my thoughts and prayers! Hugs to you and your family. What a tough little boy, you are going to get through this!:)

Anonymous said...

My heart aches for your precious baby boy and for you and your husband. I am constantly amazed at your strength... all 3 of you! As a parent, I can't imagine being faced with all that you have. I cry with you and pray that your sweet Noah continues to be strong and finds himself safe, comfortable and healthy once and for all!!!

Anonymous said...

Praying for your family

Anonymous said...

Praying for Noah (and your family)...
Kathy

SquishyButtsBabyStuff said...

Praying for Noah and for all of you <3

About Me

My photo
Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

Blog Archive

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

Grab Our Button!

Photobucket

My handsome men!

My handsome men!
Powered by Blogger.

Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

Followers

Blog Design By

Photobucket

Blog Archive