Sunday, November 21, 2010
Noah has pooped TWICE today!!!!!!!!!!!!!! This is such AWESOME news!!! His belly is still distended but not as much as it was yesterday!
Today we have gone back up a smidgen on the epinephrine to help with his renal saturation. So far so good.
We are now starting feeds with Noah. Just 5cc's an hour through his g-tube. This should also help stimulate bowel activity as he wakes up and eventually help with his renals.
He still has the constant fever and it is now resistant to Tylenol. But nothing has grown from the cultures which is a good thing but also frustrating at the same time.
They were thinking that he was hallucinating earlier which can be a side effect from some of the sedation drugs. They gave him a one time dose of some kind of drug that helps with this kind of thing. Pray that these hallucinations (if that is even what he is having) will go away.
Please add the rest of my family to your list of prayers... it is hard for them to see Noah in this condition. Who can blame them?? I certainly can not! But this hospital stay is taking a HUGE toll on all of us! But with God's comfort and perfect plan, I KNOW Noah will be fine! I have had a strong feeling that Noah will grow up to be an inspirational speaker!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

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He is getting so BIG!!!!
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Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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