Sunday, January 30, 2011

We are at the end of January already!

Sorry my updates are starting to have some gaps between them. Most days lately it has been same news but other days I just don't want to write, mainly because I just don't want to relive the day.

I am very happy to let you all know that Noah is doing very well! He has been vomiting after every feed for the past week, and they tried many different strategies to help. Today, he has not vomited at all! Praise God! I needed today! I was getting so worn out and exhausted from Noah's constant vomiting and lack of sleep. I was literally only getting 2 hours total of "sleep" every night this past week. I think I have permanent bags under my eyes! But I am SO grateful for today! I am praying tonight is a smooth night as well.

A few days ago, they pulled Noah's PICC line. It had come back twice with multiple positive cultures which meant that the line was contaminated. It being gone also means that the Milrinone is no longer running... PRAISE GOD!! Noah's heart function is improving! He is no longer on any antibiotics either and has not had any fevers!

In the morning they are going to be drawing his weekly labs... the PICC line being gone means that they will have to poke him though :/ ... they are also going to have a chest x-ray. If the x-ray comes back with good results, then they will start weaning his high-flow. He is less junk these past couple of days and his voice is getting stronger. He is even starting to babble a bit :)

All great steps in the right direction! Please keep those prayers coming!!! Thank you!

5 comments:

Anonymous said...

Whooooo Hooooooo!! So glad to hear all the exciting and great news! :) Go Noah!

Anonymous said...

WHAT A WONDERFUL PRAISE AND I AM KEEPING YOU IN PRAYER ALSO. ALOT OF TIMES AFTER THE CHILD STARTS TO HEAL AND HAS LOTS OF GOOD DAYS IS WHEN THE PARENT STARTS TO HAVE PROBLEMS IT IS LIKE THEY STAY SO STRONG FOR THE BABY THAT THEY FORGET ABOUT THEMSELVES. SINCE NOAH IS DOING SO WELL SEE IF YOU CAN MAYBE GO TO A HOTEL CLOSE TO THERE OR MAYBE EVEN AFTER THIS SNOW STORM PASSES COME HOME FOR THE NIGHT JUST TO GET A GOOD NIGHTS SLEEP. YOU NEED IT DEB YOU DON'T WANT TO GET ANYMORE BURNT OUT THEN YOU ARE ALREADY. I SAY AFTER THE STORM SO THAT WYA YOU CAN GET BACK UP THERE IS A HURRY IF NEED BE. I WILL PRAY ON THIS BECAUSE I DON'T HAVE THE MONEY TO GIVE YOU FOR A HOTEL BUT MAYBE YOU COULD USE A ROOM AT THE RONALD MC DONALD HOUSE FOR A DAY OR TWO TO CATCH UP ON YOUR ZZZZZ'S GREAT NEWS FOR NOAH THOU AND I WILL CONTINUE TO PRAY ABOUT HIS FEEDS

Anonymous said...

So proud of you, Noah! You are so strong! Rachel Haake

Anonymous said...

I pray every day for God to keep you all close and to give you the strength you will need to get through Noahs fight... I will keep you all in my prayers and thoughts

Debbie Cockrum

Anonymous said...

Not much of a prayer kind of person, but I have been thinking of you, Noah, and your husband, hoping that Noah would pull through. I am so glad Noah is doing better. My little boy was born June 9, same year. Every time he has been sick, which made me feel helpless, I thought of your boy and how infinitely more helpless you must have felt. No parent should have to go through this. I am holding your hand mentally.

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Dec. 6, 2010

Dec. 6, 2010
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