Tuesday, January 18, 2011

Time for an update


Sorry for the long delay in updates. I didn't realize it had been a week since the last one.

Noah is doing great with his feeds. Tolerating them well! He is up to 35cc's an hour. They have even started letting him drink by mouth! He is still pretty weak so he gets tired easily but he was SO eager to get back to normal when he saw his speech therapist come in with his bottle! :) Friday, she is even going to start bringing him mashed potatoes with sour cream to practice with. He is going to LOVE it!!

Noah had a PICC line placed last week and has since then had his CVL pulled. He is no longer on antibiotics so the CVL was not needed. Plus, they don't like to leave CVL's in as long as he has had his. His sedation meds have been switched to oral meds. He is still doing well with the wean.

They tried weaning the Milrinon (heart med) but have gone back to the original dosing. Hopefully we can get his switched to Captopril so we can get closer to taking the PICC line out.

WHEN Noah gets sent home, we will be coming home with CPAP again and a new machine.... the vest therapy machine. Praying he won't need them for long. But we are still a little ways out before they start mentioning the "H" word.

There is a lot more information but I am too tired to remember it! Hoefully it will come to me in the morning. Good night all! And thank you for keeping Noah in your prayers.

Enjoy this video of my sweet boy!!!

4 comments:

Anonymous said...

Finally an update!!! I have been waiting all week! God is great!

Ellie Kuder said...

He is so very sweet.

Anonymous said...

I found Noah's site through our home health nurse, Barb, and I'm so addicted now to Noah, and that sweet little face. I am so happy to some awesome progress for your little guy! & best of luck on your endeavor with the clothing for ill children in hospitals! Just reading your posts we feel like we know you all. Please know Noah and his entire family our thought about often by our family!

Surviving Triplets said...

What great news! I hope he continues on this road :)

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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