Saturday, February 5, 2011

Feeling kinda crumby...

I am exhausted. Between Noah vomiting and coming down with some kind of baby bug and both of us NOT sleeping this whole week, I am surprised my eyes are able to stay open. I feel on the verge of tears lately. I want to go home and I know it is getting closer but it is just not happening as fast as I would like. Sometimes it is just hard to wait. NO... all the time it is hard to wait. And to top it off, Aaron has not been able to see us since this past Monday and we still will not see him until next weekend! I will say this, though, I am SO glad that Noah was NOT home for that crazy blizzard! I would have been in a panic mode the whole time!

Alright... Now to get to the update....

Noah had been vomiting over night again 2 nights ago. He spiked a fever and had a heart rate over 160 so they drew labs. His white blood cell count was elevated but they have not started antibiotics this time. Today, he has only threw up a couple times. And as of this moment, he is napping peacefully. I do not believe he has an infection of any kind... I just think it is some kind of "normal" bug. Never the less, I can not stand to see my baby sick and miserable.
His high flow is being weaned down. He is currently on 3 liters of flow with 40% O2. They are going to come down on the O2 a little more and then come down on the flow as he tolerates it. He has gotten a little more congested the past couple of days, but again, I just think that is part of the bug.
They are going to keep him on 22 calorie Neocate formula as long as he is still gaining weight.
Still working on weaning him off his sedation meds.... still a long process with Noah. They are going slow with him just because of how bad he withdrawals if we go too fast.
I am going to end the update for now. Thank you all for your continued support and prayers.

1 comments:

Anonymous said...

Dear Aaron and Debbie;
My heart aches for you, both, BUT, I'm trusting with you and believing God has a perfect plan in place. These verses have helped me. Ps.27:14 "Wait on the Lord: be of good courage, and He shall strengthen thine heart: Wait, I say, on the Lord." Ps. 28:8 "The Lord is their strength and He is the saving strength of His anointed." Ps.32:8 "I will instruct thee and teach thee in the way which thou shalt go: I will guide thee with mine eye." And, a last one, Ps. 33:4 "For the Word of the Lord is right and all His works are done in truth." May His presence renew your strength. With much love and prayers, Phylis

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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