Sunday, January 9, 2011

2 steps forward, 1 step back

Noah had 2 really great days... Until this morning. His heart rate was in the 180s for a few hours and a high temp. He has been cultured to rule out a new infection. Results still pending. In the mean time, they have added 1 or 2 more antibiotics. They also gave him albumen because they were thinking he could also be dry. This helped his heart rate come down a little. They have also restarted the epi. They held off on giving him any breaks from the CPAP. Hopefully we can start those again tomorrow. His pancreatic enzymes have gone up even more... now he is in the 1200's. But we are not feeding him so it really is a mystery as to why. Dr. Arca (general surgeon) came in today to discuss what she thinks we should do. She said that we should just feed him as long as he is not in any discomfort. So tomorrow, we should be starting feeds again.
After the rough start to the day, Noah has gotten better. He still has a little temp but the Tylenol seems to be helping. Some of my family came to visit us today. It was good to see them all. And great for them to see Noah's improvement. Aaron FINALLY has gone home. He goes back to work in the morning. Bright and early. I was and still am very sad that he had to go but we need this. I just need prayers that we can be a family at HOME very soon. PLEASE!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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