Tuesday, January 11, 2011

Quite a few changes....

Noah did not get a heart cath today... THANK YOU JESUS!! He has now been extubated for a week and is doing great! He is still on CPAP but is given one 2-3 hour break onto high-flow during the day. Even with the breaks he is breathing comfortably. Hopefully soon we can get him on the high-flow.
We have restarted feeds today. So far, so good. He is only at 3 cc's an hour but it is a start. Surgery told the ICU doctors to stop checking his lipase (pancreatic enzymes) as they feel it is just a number. If he were to show signs of discomfort, vomiting, distended belly, etc. then they should check it again. So... Pray that us feeding keeps going in the right direction so that we can get him to full volume feeds again and off the TPN and lipids.
The weaning of his sedation meds is going well. He is still sleeping quite a bit, but is more and more responsive to us. He is very weak still from being bed ridden for 2 1/2 months but every day he gets a little bit more strength back. He has not started saying his usual babble and talk... still coos here and there. I can't wait to hear him jabber again :) I am praying to hear him call me Momma again, soon.
His cough is getting a lot stronger. He is clearing more and more secretions and they are getting a lot more out when suctioning him. His lungs are getting better every day.

Please continue to pray that we can get him off CPAP soon and onto high-flow and then on his home O2.
Pray for his feeds to go well so we can start increasing the volume so we can get him off the TPN and lipids.
Please pray for Aaron and I that we will not miss each other too badly and that we can all three of us, be home TOGETHER soon!

** A reminder for those who are wanting to help with the Clothing for Childrens... I will be reserving a conference room here to have a "sewing party". I would love to have input as to a good day to have one. I am thinking Sunday's would be best?? For those who do not sew but want to help, we need pattern cutters!! Please email me at DebiLSolomon86@aol.com for more information. I am also taking material donations or Joann gift cards!! Thanks!

6 comments:

Anonymous said...

Great news all around. I really like the new look of the blog background. Praying for you all.

Julie Rhoads

Anonymous said...

praying for your little guy...stay strong for him

Anonymous said...

praying hard for noah loves hugs and kisses to baby noah

Opa said...

I'm glad he's started feeds again, and wishing he could have had some of his Auntie Bre's Chicken and Artichoke dish. I love how you keep asking for prayer on the "Pray for Baby Noah" page. Even with the title, we need to be reminded what he needs now.

Anonymous said...

http://www.facebook.com/event.php?eid=243134009029992

is this yours? if you would like to get ahold of me my email is brookelynn_brodynmikhail@aol.com

Anonymous said...

^^you can also get ahold of me on facebook under the same email

About Me

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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