Friday, January 21, 2011
Noah is 19 months old today! He is doing really great considering all he has been through these past few months. Thank you Jesus for this blessing.

We are coming up on 3 weeks post extubation. Noah is still on high-flow during the day and CPAP at night. However, last night when we put the CPAP on, he cried and cried and cried and would not settle. So I asked if we could leave it off for the night. He did better but still didn't sleep much. Today his respiratory rate is a little higher than usual. I hope that not having the CPAP on last night set him back any. I feel so helpless. He is getting his treatments 2 times a day. He is still very junky but he has a good cough to clear it for the most part. Last night he got his Synagis shot to protect him during the flu/cold season... he gets those once a month.

He is at full volume feeds now. We just need to work on getting him on full calories. But yesterday he had started throwing up. Not sure if this is from trying to go up in calories or if he is starting to come down with something. We are also letting him practice eating by mouth. It is a very slow process... when you have not been taking anything by mouth for over 2 months, you lose your natural skills. But progress is progress.

The milrinone has been weaned back down again. So far, so good. Hopefully we can get him off of it soon. They're going to take it a little slower, though. His renals are stable and his blood pressure is doing good. The weaning of his other drugs is going very well... we are getting close to having him off them! PRAISE GOD!

Noah got a big boy bed a couple nights ago! I was super excited because NOW I can get in there and cuddle with him! We both needed it! He loves it too... he plays with my eyelashes and falls asleep almost instantly. We even got to take him on a stroller walk around the unit yesterday. He of course enjoyed every second of it as well as us! :) Hopefully we will be back on the 5th floor next week!

Aaron and I have been doing okay. Aaron is back at work with the exception to part of this week. I really enjoy having him with us. We recently applies with an apartment a few weeks ago and a couple days ago we received the phone call saying we did not get approved. On to the next door to see if it will open....

Prayer requests:
For Noah's respiratory condition. He is breathing fast, even when sleeping. Please pray that he is not getting sick.
For his toleration of the higher calorie formula.
For his overall strength to improve.
Our apartment search.

1 comments:

Amy said...

I am so happy for you guys! Noah is doing so good. I will definitely keep praying for you guys. I'm glad you get to snuggle with your little man now. I bet he starts doing even better faster now that Mommy can be close to him =)
Thank you Jesus for the miracles you are working in their lives right now. I ask that you reach down and touch Noah with your healing hand. You are the Great Physician and we give you all the credit for the mighty miracles that we have seen in Noah and will continue to! I ask that you clear his lungs and slow his breathing. I also pray against any sickness that may be invading his body and whatever is impeding/hindering his bodie's ability to process his food. Now, Lord you have said, "By Your stripes we are healed!" and we are claiming that healing right now in the name of Jesus for Noah. Lord, you know what's best for them with their housing situation and I ask that you lead and guide them in the direction they need to go. Most of all Lord we pray your will on everything and that you be glorified through all of this. I also ask a special blessing on Debi and Aaron. I pray you give them your peace and your wisdom in making decisions for precious Noah. In JESUS name, Amen!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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