Friday, January 7, 2011

So far, so good!!!!!

Noah was extubated yesterday!!!!!! He is doing great! It is so cute to hear his weak little coo's. His cough has already gotten stronger in just 24 hours. This is great because he can clear more secretions. He still needs a lot of suctioning, though, but he is doing really good! He is on CPAP for now. Once he shows signs of more airway strength, they will start to transition him to highflow. Once on highflow, he will be more mobile!! Then once he is tolerating the highflow, they will transition him back to his home O2! We are so excited! He still has a ways to go, but look at how far he has come!!!!!
The next challenge will be feeding him. The GI doctors want his pancreatic enzymes to be at or below 300 for at least 3 days before we try feeding him. Yesterday, he was in the 300's. Today, they are in the 400's. Please pray that these level out and stay at the normal range. I REALLY want to get back to feeding him!
He is doing great with the weaning of the sedations. He still is going through withdrawals but they are NOTHING compared to last week! We have a better control of them. PRAISE GOD!!!!!!!!!!!!!

Please continue to pray for complete healing in Noah. Pray for his airways to clear and the transition back to his home O2 to be quick and smooth! Please pray for our living situation and that God leads us where he wants us to be. Thank you :)

A couple days ago, I was inspired to make clothes for the patients at Childrens Hospital. I am in the process of designing clothing that meets the medical needs of the kids but also looks super cute and fun. Noah has been naked almost half his little life and there are plenty of outfits he never got to wear because of him being in the hospital for long periods of time. There are a lot more kids in the same situation and I want to help! I am wanting to make this inspiration a reality and I am going to need a lot of help! If you are interested in helping with this project (i.e. donating needed materials, sewing outfits together, cutting out patterns, etc.) please email me at for more information. Thank you!!


Anonymous said...

Praise the Lord!! God does not forget us:) from Charity R

Anonymous said...

AWESOME!!!!!!!!!! AWESOME!!!! I can't stop saying it. AWESOME!!!!! :) Praise God, He is SO AWESOME!!! I am so happy for you guys, I am so happy things are getting a little easier for Noah!
And Praise YOU for thinking of others when you have so much going on. These gowns are such a great idea. I def. want to help. Would I be able to take some patterns home with me to cut & sew up?
I was also wondering if you would mind if I posted your needs/idea for the project on a note on my fb page in case anyone I know would like to help you, or get donations to you?
We continue to pray daily for you and Aaron and Noah, and we're so THANKFUL for the healing the Lord is doing and the way he's sustained you and Aaron through all of this. HE's Awesome! And so are you guys!! :)
Dani Lopez

HelloMyStar! said...

God bless him -- he's such a strong boy. c: God is good! I pray that he'll stay strong -- and you, too. Sometimes, no one realizes what a toll it has on the parents as well. And I know those clothes will go to a good use! c:

--Love and prayers,
Marina M. / Forgotten ( first heart about him from CS, from Rainpelt )

Rebecca said...

Praise him from whom all blessings flow. That is awesome that he is doing so much better. Yay! i am so happy im keeping on praying and thinking about you and your family. GO NOAH and GO GOD!

About Me

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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My handsome men!

My handsome men!
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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!


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