Thursday, December 30, 2010
Noah had another echo done today, the reason being that he was started on epinephrine again. The results showed high pressure in the right side of his heart. So they will be discussing him on Monday in the cardiac meeting. He could need another cath done to determine just how high the pressures are or they could start him on a new medication.
His withdrawals are getting a little worse. It is like he is hyped up on caffeine and is restless. We are having a really hard time balancing this out... but we have been down this road before and we know it will end.. just difficult to live in the moment. His nights seem to be worse than his days. We just need a lot of prayers this week. Aaron is going back to work on Monday and it is making me nervous with Noah's condition right now. But we both need him to go back... he needs to have a bit of normalcy to get his mind of things here and then there is the financial end of things. But we are leaning and trusting God for ALL things and He has been faithful.

I can not wait till we are done with this stay! SO many things going on right now and it is all tearing me down emotionally.

Please continue to pray for Noah's pancreas... there was an increase in his enzymes this morning. Pray for his heart pressures to normalize. For his withdrawals to start getting better and NOT worse! Pray for our [future] living situation... We have decided to NOT go with the apartment complex. They had been giving us too many problems for us to be comfortable with signing a year lease with them. We need to have a home for Noah to come home to where we have the space. Please pray for me, as after this Sunday, I will once again, be here with Noah on my own for the most part. I will not have transportation once Aaron goes back to work so the only time I can get out of the hospital is when he or other family members visit. Thank you.

2 comments:

Anonymous said...

God works in amazing ways. Praying everyday. :)

Anonymous said...

am praying for the NEw Year to bring lots of special great news for the whole family

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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