Monday, December 13, 2010
Morning rounds, we discussed Noah's surgery. It is in the schedule for Wednesday still, we just don't know exactly what time yet. But it will be an all day event again. They are deciding whether or not to do a heart cath at the same time as the surgery... again, something that will be decided that morning. Noah is in pretty significant heart failure. It is causing his organs to work extra hard. They are pretty much just going to work on keeping him comfortable until Wednesday... no real big changes.
Today, we are struggling with keeping him comfortable, though. He looks like he is in pain or something... cries almost every hour. Poor buddy. His temperature goes up as he gets agitated too but nothing has grown from the cultures, so no sign of infection.
They have been having to suction him a lot as well.. and he has been throwing up a lot of mucus. His liver is extremely large and almost rock hard. This could be because his heart is sick.
Pray that the surgery on Wednesday will go without bumps and that this recovery time will go a lot quicker and more smoothly. Pray for Aaron and I... it is putting a strain on us as individuals. We just need a break from life for a little bit, but that is difficult when we worry about our baby boy.

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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