Noah is having a good day today. They are giving him hour breaks from the CPAP to try to get him back on to highflow. So far, he has done well. He still works a little more but it is getting better.
Cardiology has not made a final decision about Noah's heart yet, so, before the end of the week they will be sending him down for a MRI. After the MRI, they will all have a conference and make the decision. If they do decided to fix his heart before we are sent home, they will most likely repair the hole in his heart only. They would save the rest of the repair until he is bigger and stronger.
We have started continuous feedings today at 5 cc's an hour. He is having a little trouble with gagging and an occasional spit up, so please continue to pray for his tolerance.
Noah received his RSV shot yesterday... one in each thigh. :( Today, he has a slight fever and an elevated heart rate, so it is hard to tell if he is still "sick" from last week or if he is just crabby from the shots or if it is his heart or liver.
His liver is more distended today, so hopefully we can get him to tolerate his feedings and get him off the TPN and lipids.
During his first break from the CPAP, I got a glimpse of his precious face without anything on it and was able to snap a quick picture before the therapist put his nasal cannula on. His gave me the sweetest smile..... :)