Sunday, February 21, 2010

Another surgery could be just around the corner...

As some of you know, Noah has had a really rough day today. His fever is still high and has been vomiting and dry heaving all day. He is getting IV fluids and nutrition to keep him hydrated but he is just miserable. His color is not looking so good either... he looks dusky and "veiny" and his nail beds are blue. His liver is down about 3 cm. They will be checking his liver enzymes in the morning and also doing viral swabs, which means he will be in isolation for at least 24 hours. His ICU doctor is going to be having a discussion with Noah's cardiologist about repairing his heart soon. He is starting to show signs of heart failure so they will be doing a heart failure test in the morning as well. Our poor baby is just SO tuckered out, he has absolutely no reserve left. I wish I could just take it all away! His chest x-rays show his lungs look almost whited out with junk. When they suction him, most of the time they suction for a good half hour and get a LOT of thick mucus and he STILL has a lot more. They just can not get it all out.
Please pray for wisdom for the doctors and surgeonns and cardiologists tomorrow. Pray that God comforts Noah tonight so he will get the rest he needs to start feeling better. Pray for Aaron and I as this week will be a lot of descission making, I am sure! Thank you.

Oh... BTW.... Noah got his FIRST TOOTH yesterday!!! And tomorrow (2-22-10) is his 8 month birthday!!!!

4 comments:

Anonymous said...

I am a friend of Ami Solomon who posted this on her facebook. I am praying so hard for your little boy, as well as for you and your husband. May God take away all of his lung secretions and make him all better as fast as possible. He is such a strong little man - as much as he has been through. You and your husband also are incredibly strong - you have been through so much as well. Trust in God and he will make Noah better.

Greg H said...

We're lifting you and Noah up in Prayer this morning and throughout the day.

Tracy Swiatek said...

My prayers are endless for the three of you, I hope that he got the rest he needed last night and that the news today is good.

Anonymous said...

Happy 8 month birthday Noah! and congrats on your first tooth!! You are such a strong and beautiful little boy. I know that Jesus is watching over you tirelessly, because he reminds me to be so very faithful in prayer for you and your family.
May our Lord and savior heal you completely and give you and your family comfort and peace beyond all human understanding. You and your family are so very loved! I serve the Lord with your grandma Debra.

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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