Tuesday, February 23, 2010

Yesterday, Noah was put on CPAP and the differance was like night and day! His fever came down, heart rate came down, respiratory rate came down. He was overall more comfortable! Praise God! The cultures they sent to the lab have come back negative, so we are just waiting for them to officially take Noah out of isolation.
We have not received the results from his ultrasound yesterday morning... they were looking at his liver, galbladder, and pancrease. His BNP, which is what they measure for heart failure, was a little elevated but lower than the previous draw. His liver enzymes are elevated as well which could be caused by the TPN he has been on for a month.. they will be looking in to reformulating it.
The cardiology team and surgeons discussed, yesterday, whether or not to repair his heart. From what Aaron and I got from the discussion, they are still undecided but if they DO do something, they would just repair the hole first and let him get bigger for the full repair. So we are just waiting for a deffinate decission.
All three of us are getting more rest than we have been! We are still pretty exhausted but it is getting better... please continue to pray about that.
Thank you!!

5 comments:

Sharilyn said...

Thanks for the great update. We keep praying. God is good. All the time.
Love your cousin Shari

Anonymous said...

Yeah ! Praise be to God ! So happy to hear about baby Noah ! What a little tropper ! You are awesome parents !We continue to hold you all up in prayer ! God is good ! Keep the faith ! Thanks for the updates ! Blessings, Stephanie Barr

Anonymous said...

Praise God , Praise God he is working all the time I'm so glad Noah is doing better and you guys are getting some much needed rest. Keep your faith. WE WILL KEEP PRAYING FOR YOU ALL AMEN !!!!!! Sign Linda

Anonymous said...

Noah, you are so LOVED and touching so many hearts. I can't wait for the day your Mommy and Daddy bring you home. My little Abby wants to play with you. Praying always
Nancy Schmidt

Anonymous said...

I have never met you, but for Noah and all of you I will send some positive and positive thought until by the right time they will have arrived. I wish you always get better

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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