Saturday, February 20, 2010

A few rough days

Noah was extubated on Wednesday. Today is day 3 of no breathing tube! He is still struggling at times to breathe, but so far they have been able to keep the breathing tube out. His lungs are very sick right now and he has a LOT of secretions that he is having difficulty coughing up. He is getting PEP (positive expiratory pressure) treatments every four hours to help him cough. So far they are working. They also deep suction him to trigger the coughing.
We are going to try feeding him today as he tolerates it.
Over night, he had a fever as high as 103.6. They have sent cultures to rule out infection. Right now his temperature is 102.7 and just received Motrin. We are also trying to cool down his body with wet wash cloths. Noah has also been very restless and will only sleep for 30 mins at a time... last night they gave him adavan and he slept for almost 3 hours! That is the most sleep he has gotten in over 3 weeks!
Noah will be receiving another blood transfusion today. His blood count is a little low and he is a little dry. His heart rate is a little on the higher side so the transfusion will help lower it.
Aaron and I are also very exhausted. We take shifts to comfort Noah so one of us can get some sleep. I am VERY appreciative of my husband taking the first shift every night! I don't know how I am going to stay awake when he goes back to work on Monday!
Please continue to pray for Noah and Aaron and I. Thank you!


Christy said...

Oh Debi....we are praying! This has been such a long hard journey for y'all.....God is there....but we know it is really hard right now. That sweet baby boy is just amazing!

Angela said...

Hi Debi- my name is Angela Pruess, my husband and I met Aaron in the infamous family lounge. haha. We chatted with him while our little girl was having the Glenn procedure last Monday. We talked for quite awhile. YOUR SON IS ABSOLUTELY GORGEOUS! His beaming daddy showed my whole family pics of him:) I am beyond thrilled for you guys to be extubated. That is the worst thing ever and you are a hero for surviving four weeks of it. We are planning on going to next months mended hearts meeting- so hopefully we will see you guys there. I'd love to meet you. You guys will most certainly be in our thoughts and prayers! Take care and enjoy your snuggles!!!

Angela Pruess

About Me

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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My handsome men!

My handsome men!
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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!


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