Saturday, February 13, 2010

More difficulties lie ahead.

I apologize for the delay in updating.. we have a lot going on.

For the past 3 or 4 days, Noah has had an elevated temperature. He has another infected line that they will be pulling today and putting in another one. His gut is starting to work better and that makes me so much happier!
Noah is still intubated... we are going on 3 weeks of having a breathing tube in. Monday they will be taking him down to the OR to do a broncoscopy. If they feel that they can adjust the pexy sutures, they will cut him open and make adjustments. If they feel that nothing can be done surgically, they will send him back on to his room and have a care conference and discuss they next step. They are trying to avoid putting in a trach but the likely hood of him not needing one is not looking so good. If they do put in a trach, the time that we would have to stay in the hospital before we could take him home is between 4 to 6 weeks. I am still praying for a miracle so he does not have to have ANYTHING done... but it is in God's hands, plans, and timing.
Please continue praying for us as the road ahead is getting more and more difficult. There are more and more times lately when I am frustrated with God and am asking a lot of "why" questions. Please pray for Noah, that the infection will leave his body and he will get stronger. Pray for safety for Monday, that whatever the doctors decide to do, that it will be successful with no complications. Thank you!

3 comments:

Anonymous said...

We are continuing to pray for you and your family. I also put it on my facebook and have lots praying to. Don't give up. God has something in store for this little angel. Noah is a little fighter. He has gone thru so much but he is not giving up. He is bringing you joy and will bring you lots more when he gets to go home and is better. We are thinking of you. Dawn

Anonymous said...

Always have you guys in my thoughts...Good thoughts, positive thinking and lots of prayers your way. *hugs*

-Patti

Anonymous said...

Amberlina,s Mom We will continuing to pray for baby Noah and Mon&Dad. Remenber its all in Gods hands. Noah is such a little fighter, be strong for him and keep your faith, trust in the Lord. *Linda*

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Dec. 6, 2010

Dec. 6, 2010
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