I apologize for the delay in updating.. we have a lot going on.

For the past 3 or 4 days, Noah has had an elevated temperature. He has another infected line that they will be pulling today and putting in another one. His gut is starting to work better and that makes me so much happier!
Noah is still intubated... we are going on 3 weeks of having a breathing tube in. Monday they will be taking him down to the OR to do a broncoscopy. If they feel that they can adjust the pexy sutures, they will cut him open and make adjustments. If they feel that nothing can be done surgically, they will send him back on to his room and have a care conference and discuss they next step. They are trying to avoid putting in a trach but the likely hood of him not needing one is not looking so good. If they do put in a trach, the time that we would have to stay in the hospital before we could take him home is between 4 to 6 weeks. I am still praying for a miracle so he does not have to have ANYTHING done... but it is in God's hands, plans, and timing.
Please continue praying for us as the road ahead is getting more and more difficult. There are more and more times lately when I am frustrated with God and am asking a lot of "why" questions. Please pray for Noah, that the infection will leave his body and he will get stronger. Pray for safety for Monday, that whatever the doctors decide to do, that it will be successful with no complications. Thank you!