Noah was extubated on Wednesday. Today is day 3 of no breathing tube! He is still struggling at times to breathe, but so far they have been able to keep the breathing tube out. His lungs are very sick right now and he has a LOT of secretions that he is having difficulty coughing up. He is getting PEP (positive expiratory pressure) treatments every four hours to help him cough. So far they are working. They also deep suction him to trigger the coughing.
We are going to try feeding him today as he tolerates it.
Over night, he had a fever as high as 103.6. They have sent cultures to rule out infection. Right now his temperature is 102.7 and just received Motrin. We are also trying to cool down his body with wet wash cloths. Noah has also been very restless and will only sleep for 30 mins at a time... last night they gave him adavan and he slept for almost 3 hours! That is the most sleep he has gotten in over 3 weeks!
Noah will be receiving another blood transfusion today. His blood count is a little low and he is a little dry. His heart rate is a little on the higher side so the transfusion will help lower it.
Aaron and I are also very exhausted. We take shifts to comfort Noah so one of us can get some sleep. I am VERY appreciative of my husband taking the first shift every night! I don't know how I am going to stay awake when he goes back to work on Monday!
Please continue to pray for Noah and Aaron and I. Thank you!