Saturday, March 13, 2010

We Moved!!

We are back on the 5th floor! Still in the ICU but at least a "less critical" one. All his W5 nurses missed him... they all came by his room to visit and all commented on how much bigger he has gotten. He then began to FLIRT with them all! What a stinker!
Noah is doing phenomenal! He is now on high flow during the day with 1 one hour trial of just a regular nasal cannula and then CPAP at night. Once they know he can handle that, they will start weening him off the CPAP at night. And once he is on 24 hours of high flow, then they will work on getting him on just a nasal cannula. We are getting SO close!!! I can feel it!!! Please pray we have no more set backs!!
Noah is still gaining weight like a big boy!! He is SOOOO chunky now! His new weight this morning was 6.721 kgs (14 lbs 13 oz)
PT and OT are going great. His legs are getting more mobile and his head control is starting to improve. We are starting to work on rolling now too.
Thank you everyone for following us on this journey so far! Thank you for your continued prayers and support!! Please continue to pray for Noah progress to continue so we can get him home! ... for LONGER than a month and a half!!!!

This is a picture of his window... His primary night nurse drew it for him!! So sweet!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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