Tuesday, March 16, 2010

Getting the ball rolling

WOW... Noah weighs 15 pounds now!!! He is SOOO chunky!!! And playful! Such a happy boy!
We are able to take Noah on walks around the unit now. So he gets 2 three hour breaks on the regular nasal cannula a day. Today during rounds, I kept getting the feeling that they are dragging their feet with Noah as far as weening him off CPAP. So... I asked them what their plan was to start on his night time CPAP because I want to TAKE HIM HOME! The doctor on this week, said we can send him home on CPAP for night time just not the high flow. WHAT?!?!!?! I thought the only thing he could go home on was O2!!! So now the paper work is started to get him approved to be sent home on CPAP and regular nasal canula during the day! It will still take at least a couple weeks to get approved but still... something got started today! My sister and mom came up this morning to visit us. They went on Noah's morning walk and got some cuddle time in. Then we went out for lunch, and what a gorgeous day it was today! 60 degree weather with the sun shining down! So beautiful! I can not wait until Noah can take walks outside!
Please continue to pray for Noah's breathing to keep improving. Also, pray for approval for Noah to be sent home on CPAP and that the insurance covers it! Thank you!!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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