Friday, March 19, 2010

Laying out the plan

In about an hour, everyone will be meeting together for a care conference for Noah. We/they will be discussing what needs to happen in order to send him home, like his respiratory care (CPAP machine), getting him weened off meds, his future heart repair, etc. I am looking forward to this meeting because everyone will be on the same page and there will only be one plan!
Noah is doing SO great! PRAISE JESUS!!!!! He is doing so well with therapies, breathing, and oral feedings! Yesterday was the first time in almost 3 months, I was able to try feeding Noah by mouth again. It took him about ten minutes to remember what to do, then he got into a rhythm and downed 50 mls! Almost half his normal feeding! God is awesome! I have been praying/ worrying about oral feedings for a long time. But when Noah first tried yesterday, he ate like he had been doing it all along! So now I get to offer him a bottle for every feeding during the day and then at night he gets the continuous feedings through his g-tube. This is what his normal home routine was :) I am so excited and filled with JOY! Noah now weighs a little over 15 lbs 5 oz!! He is gaining weight so fast and getting stronger by the day! Aaron and I cannot wait to take him home!
I have been able to complete some of Noah's scrapbook. I have been having so much fun with it! I am, now, starting to plan out his first birthday celebration!!! I know... it is 3 months away!! But once he gets home, I am going to lose most of my downtime by playing with my wireless baby!! :D I can not wait to take him on walks everyday and get out in the sunshine! I am getting excited just dreaming about it!
Well, I gotta get off for now... time to feed Noah!!!!!! And then the conference!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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