Sunday, March 7, 2010

So much progress to be thankful for!!

Noah is doing AWESOME! We are now giving him three hour breaks, three times a day from the CPAP. Every break he seems to be breathing a little easier each time! God is FAITHFUL!
They are working on weening his clonodine right now and sometimes he shows signs of withdrawal. They are taking their time with this though, which is good.
Noah is having great weight gain... He now weighs 6.425 kg which is 14.1 lbs!!!
We are doing our physical therapy at least once a day with him. He is still pretty weak and gets tired quickly, so please continue to pray for his muscle strength to improve.
Hopefully this Wednesday or by the end of this week we can have Noah off the CPAP all together. And then soon, off the high flow so we can take him on walks and get him out of this room for a bit everyday.
There isn't much else to update on right now...
There is a woman who will be running a marathon and the fundraising goes towards a savings account for Noah. When they have the website all set up, I will post a link on here.
Thank you EVERYONE for your unconditional love and prayers! Let's stay strong together!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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