Wednesday, March 10, 2010

Another day has come and gone

This is one tough roller coaster we are on! But today was a GREAT day! Noah is doing AWESOME on the high flow breaks! He is starting to feel more like himself than the past 2 days. Tomorrow they are going to go up on how long he gets his breaks. He will now get 2 five hour breaks on high flow with only 2 hours of CPAP in between and then CPAP throughout the night. Then over the weekend he will be on high flow all day and then CPAP at night. I can sense our homecoming is approaching! Please pray that I am right!!! :)
Tomorrow morning, Noah will be weighed again. He has lost a little weight over the past few days. Most likely from throwing up that one day. Since then we have tried the lower calorie but with a higher volume and he is doing just fine. Please pray he has gained weight with this new change. Thank you all!

Also.... the site for Noah's benefit marathon is up and working!!! Please check it out!!
http://www.allsportcentral.com/donation/index.cfm?EventID=23232

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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