Saturday, May 14, 2011
This past week has been a hectic one. Noah had been going through one of his vomiting spells... only, this time, it lasted a bit longer than normal. He has lost a lot of weight as well. He lost 13 ounces this last week. He is actually under his weight that he was before he was admitted back in October. When he was discharged on February 23rd, he weighed close to 21 lbs... He now weighs 18 lbs 1 oz. He has become so thin. I have been getting so frustrated with the team that has been "helping" me with his weight progress. But we seem to finally have a game plan. I will say that this past week, Noah has become even more active, therefore is using up the calories he does get. If he does not start gaining .. or even maintaining a weight, that they will need him to be re-admitted for failure to thrive. That is exactly what he does NOT need! He needs to be home and STAY home! Noah was also started on a new med to eliminate this pattern of vomit spells he has. One of the side effects of this med is that it can make you hungry. Those are the 2 reasons he was started on it. And today it seems to be kicking in! he has been on it for a week and last night, he actually ATE! BY MOUTH! PLEASE PLEASE PLEASE... pray that his body keeps responding the way it is and that we can fatten him up!

In other news... Aaron and I are waiting on the Lord to FINALLY open the door to our place! It is coming soon!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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