Friday, December 23, 2011

Time for a REALLY great update...

his month has had a few great accomplishments. The first being, Noah getting into the CVS (cyclic vomiting syndrome) clinic. He is now being seen by the top CVS specialist in the world! We now have some plans written down for prevention and rescues. Since then, I believe we have successfully prevented two cycles from happening/worsening!

There is a CVS Awareness walk this coming June in Milwaukee. A dear friend is planing to visit during this time and we are going to be walking for Noah!

Lately, Noah has been doing some amazing things. This past week, he has been pulling himself onto his knees using the coffee table. He is getting so strong! As of today, he has started pulling himself to stand! Here is the video to prove it..... :D



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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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My handsome men!
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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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