Thursday, November 3, 2011

Caught off guard...

Earlier today, Noah had a cardiology evaluation with the heart cath doctor. He talked to us about Noah's case and whether he would be a candidate for a medication that could help with him coming off his O2. From the sound of it, he may not be. But before they would make any decisions, Noah will need a heart cath to determine if the med would actually work for him. They also need to get a better understanding of the pressures in his heart and lungs. This heart cath will most likely be scheduled before the end of the year. This is what caught me off guard today. I didn't think it would be so soon. But God is always in control and I need to keep reminding myself and relinquishing that control. Something else that was "mentioned" was the fact that the cath could possibly show a need for additional heart surgery. We are praying against this but if this is what needs to be done, then, again, we need to let God steer us in the right direction. It is FAR from "easy" to begin thinking of these coming plans. The information we received today, came with nervous feelings and a little sadness.

Tomorrow marks one year since the initial open heart surgery. I can not believe it has been a year already! And then, Saturday, marks a year since Noah's heart stopped beating for over 40 minutes. Look at how far he has come! God gave us a miracle! And to see Noah today, terrorizing our home and climbing into our entertainment center and learning new words... well, I have never witnessed anything more miraculous!
I love you, Noah Michael.
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2 comments:

Abby Beaulieu said...

I am a friend of Aarons from Middle school. I am a blog writer and added your button to my blog:) All my prayers... I remember last year reading all the blogs about him being in the hospital and I cannot believe it has been 1 whole year!! Prayers always

Kathy Miller said...

Praise God for miracles and praise God for Noah. Please let us know what is happening now. We keep you in our prayers.

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

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Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

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