Monday, March 1, 2010
March 1st
Sorry for the delay in updates...
Noah has been doing quite well lately! He has been getting good amounts of sleep at night and VERY active and HAPPY these past few days! He is drooling like nobodys business and what does he have to show for it??? TWO teeth! He is getting so big! :)
Noah has not had a temperature in almost 4 days now. He is comfortable on the CPAP and tolerating his feeds... which he is now on FULL feeds as of today! Now we just need to see a weight gain! They are going up on his calorie intake so he should be gaining weight quickly. They are going to be turning off his milrinone drip today and taking him off the lipids later this week. He is already off the TPN which is good! And hopefully by the end of the week they can take out his central line!
The plan right now is to leave him on the CPAP for another week or two. They don't want him working too hard and lose valuable calories. They are giving him breaks from the CPAP still and every time gets a little easier for him.
Aaron is going back to work tomorrow and this is going to be very hard for me to get used to again. Aaron has been with us since Noah's surgery back in January. I am going to be alone most days again. Please pray that I don't become insanely bored! lol!
Noah has been doing quite well lately! He has been getting good amounts of sleep at night and VERY active and HAPPY these past few days! He is drooling like nobodys business and what does he have to show for it??? TWO teeth! He is getting so big! :)
Noah has not had a temperature in almost 4 days now. He is comfortable on the CPAP and tolerating his feeds... which he is now on FULL feeds as of today! Now we just need to see a weight gain! They are going up on his calorie intake so he should be gaining weight quickly. They are going to be turning off his milrinone drip today and taking him off the lipids later this week. He is already off the TPN which is good! And hopefully by the end of the week they can take out his central line!
The plan right now is to leave him on the CPAP for another week or two. They don't want him working too hard and lose valuable calories. They are giving him breaks from the CPAP still and every time gets a little easier for him.
Aaron is going back to work tomorrow and this is going to be very hard for me to get used to again. Aaron has been with us since Noah's surgery back in January. I am going to be alone most days again. Please pray that I don't become insanely bored! lol!
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About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Click on a link below to learn more.
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
He is getting so BIG!!!!
Getting a short break from his O2 :)
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My handsome men!
Me and my boy :)
Dec. 6, 2010
I got to hold Noah!!
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2 comments:
So happy things sound so promising!! Love the new pics! So glad y'all had a great bday for you! Lots of prayer warriors who wont stop...even once y'all go home! Find a good Beth Moore Bible Study to do...she is great! Do you have a way to watch DVD's there...I figure you do but wanted to make sure! Talk soon! Love ya
That is wonderful to hear! So exciting about the teething too! Nothing seems to be stopping him too much!! What an angel. Good luck being there on your own- it can definitely begin to get crazy making after awhile... Maybe we'll see you guys at LMH's next tues? We'll keep praying for Noah....
take care, Angela Pruess