In about an hour, everyone will be meeting together for a care conference for Noah. We/they will be discussing what needs to happen in order to send him home, like his respiratory care (CPAP machine), getting him weened off meds, his future heart repair, etc. I am looking forward to this meeting because everyone will be on the same page and there will only be one plan!
Noah is doing SO great! PRAISE JESUS!!!!! He is doing so well with therapies, breathing, and oral feedings! Yesterday was the first time in almost 3 months, I was able to try feeding Noah by mouth again. It took him about ten minutes to remember what to do, then he got into a rhythm and downed 50 mls! Almost half his normal feeding! God is awesome! I have been praying/ worrying about oral feedings for a long time. But when Noah first tried yesterday, he ate like he had been doing it all along! So now I get to offer him a bottle for every feeding during the day and then at night he gets the continuous feedings through his g-tube. This is what his normal home routine was :) I am so excited and filled with JOY! Noah now weighs a little over 15 lbs 5 oz!! He is gaining weight so fast and getting stronger by the day! Aaron and I cannot wait to take him home!
I have been able to complete some of Noah's scrapbook. I have been having so much fun with it! I am, now, starting to plan out his first birthday celebration!!! I know... it is 3 months away!! But once he gets home, I am going to lose most of my downtime by playing with my wireless baby!! :D I can not wait to take him on walks everyday and get out in the sunshine! I am getting excited just dreaming about it!
Well, I gotta get off for now... time to feed Noah!!!!!! And then the conference!