Yesterday, Noah was put on CPAP and the differance was like night and day! His fever came down, heart rate came down, respiratory rate came down. He was overall more comfortable! Praise God! The cultures they sent to the lab have come back negative, so we are just waiting for them to officially take Noah out of isolation.
We have not received the results from his ultrasound yesterday morning... they were looking at his liver, galbladder, and pancrease. His BNP, which is what they measure for heart failure, was a little elevated but lower than the previous draw. His liver enzymes are elevated as well which could be caused by the TPN he has been on for a month.. they will be looking in to reformulating it.
The cardiology team and surgeons discussed, yesterday, whether or not to repair his heart. From what Aaron and I got from the discussion, they are still undecided but if they DO do something, they would just repair the hole first and let him get bigger for the full repair. So we are just waiting for a deffinate decission.
All three of us are getting more rest than we have been! We are still pretty exhausted but it is getting better... please continue to pray about that.
Thank you!!