Wednesday, February 24, 2010
Slowly making some progress
Noah is having a good day today. They are giving him hour breaks from the CPAP to try to get him back on to highflow. So far, he has done well. He still works a little more but it is getting better.
Cardiology has not made a final decision about Noah's heart yet, so, before the end of the week they will be sending him down for a MRI. After the MRI, they will all have a conference and make the decision. If they do decided to fix his heart before we are sent home, they will most likely repair the hole in his heart only. They would save the rest of the repair until he is bigger and stronger.
We have started continuous feedings today at 5 cc's an hour. He is having a little trouble with gagging and an occasional spit up, so please continue to pray for his tolerance.
Noah received his RSV shot yesterday... one in each thigh. :( Today, he has a slight fever and an elevated heart rate, so it is hard to tell if he is still "sick" from last week or if he is just crabby from the shots or if it is his heart or liver.
His liver is more distended today, so hopefully we can get him to tolerate his feedings and get him off the TPN and lipids.
During his first break from the CPAP, I got a glimpse of his precious face without anything on it and was able to snap a quick picture before the therapist put his nasal cannula on. His gave me the sweetest smile..... :)
Cardiology has not made a final decision about Noah's heart yet, so, before the end of the week they will be sending him down for a MRI. After the MRI, they will all have a conference and make the decision. If they do decided to fix his heart before we are sent home, they will most likely repair the hole in his heart only. They would save the rest of the repair until he is bigger and stronger.
We have started continuous feedings today at 5 cc's an hour. He is having a little trouble with gagging and an occasional spit up, so please continue to pray for his tolerance.
Noah received his RSV shot yesterday... one in each thigh. :( Today, he has a slight fever and an elevated heart rate, so it is hard to tell if he is still "sick" from last week or if he is just crabby from the shots or if it is his heart or liver.
His liver is more distended today, so hopefully we can get him to tolerate his feedings and get him off the TPN and lipids.
During his first break from the CPAP, I got a glimpse of his precious face without anything on it and was able to snap a quick picture before the therapist put his nasal cannula on. His gave me the sweetest smile..... :)
Subscribe to:
Post Comments (Atom)
About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
Blog Archive
- 2012 (1)
- 2011 (33)
-
2010
(88)
- December(18)
- November(35)
- May(3)
- April(1)
- March(9)
-
February(17)
- Getting answers is always nice
- Slowly making some progress
- Yesterday, Noah was put on CPAP and the differance...
- Another surgery could be just around the corner...
- A few rough days
- Yay!!!!!!
- Good news...
- Happy "Heart" day!!!!
- More difficulties lie ahead.
- Still waiting for God's timing..
- Noah has a BIG day tomorrow morning!
- A confusing and frustrating day so far...
- God is hearing our prayers!!! Don't stop now!!!
- Sing with me, How great is Our God!
- Another day,come and gone. Aaron's mom flew back u...
- Noah Solomon ... Birth to present...
- Renew your Magazine subscription or buy cookie dou...
- January(5)
He is getting so BIG!!!!
My handsome men!
Powered by Blogger.
6 comments:
Debbie, you are an awesome mommy!
Love the picture!
Awww! How great it is to see his face. :D
Beautiful. We will be praying for you all! Annamarie, 1in100
oh my goodness, what a precious smile!
I am praying for him.
Lisa
Mended Little Hearts of Charlottesville
What a sweet little guy! Hope all continues to go well for him!