Sunday, November 7, 2010

For those who have been asking.....

If you want to send packages, get well cards or anything, you can send them to his room


Childrens Hospital of Wisconsin
c/o Noah Solomon room #W317
9000 West Wisconsin Ave
Wauwatosa, WI 53226


The day of Noah's heart surgery, I went to parent art therapy and had painted heart shaped box that has a lid. I would LOVE to fill it with little messages from all who are praying for Noah so, when he is older, he can read them and know how many lives he has blessed. Please send all messages to the address above! And please pass the info on to your friends. Thank you, Noah's Mommy :)
Noah had a relatively good day today. His ECMO dressing had started pooling around the seams and seeping out the edges a little more today, so they actually went back in his chest to explore. They cleaned out a LOT of clots in the chest and chest tubes and now his chest tubes are draining more efficiently. His chest is now a little more closed after the cleaning. They have started slowly warming him about an hour and a half ago. The goal is for tomorrow morning, to turn off his paralytic. He is still on a lot of pain and sedation control, so he should not move as much. They are also going to try weening down his support tomorrow afternoon some time. He has behaved nicely today :)

Good night! New update will be later in the afternoon tomorrow. There will most likely NOT be a morning update.
No real changes in his recovery plan. He is doing good though. His kidney function is getting better. His heart rate is coming down and is in a nice steady rhythm. So overall, his body is making a nice slow recovery from the trauma just 2 days ago. They will begin to warm his body up slowly starting tonight at 8pm. His paralytic will be turned off tomorrow morning and try weening down the ECMO just to see how he will do. He is still on a really good dose of Fentanyl and Ativan, so he still won't be moving much but he will still be comfortable. Last night, I noticed that he is starting to retain a little fluid which I am surprised it took this long to show up! His ECMO dressing may be cleaned out and changed later today.
As always, thank you for your continued prayers. Love from the Solomon's :)

SN: I REALLY can't wait to get my baby back!!
Saturday, November 6, 2010
The excessive bleeding has slowed, if not, stopped, so they will not be going back in his chest today. They are leaving him on the ECMO for a few days, at least. His pressures are better and so is his urine output. Overall he is more stable than last night. He is responsive (with his BP) when they do cares, so that is a great sign! His pupils are really small and that means he is nicely sedated and comfortable. The echo last night showed that his heart function has decreased but that is expected with the episodes he had yesterday. His Grandpa Solomon arrived earlier this morning!!!! This is the first (but NOT last) time that Noah gets to 'meet' his grandpa. We are so grateful for the Lord allowing him to be here. Noah's Mimi and Aunt Ami and Uncle Chad are driving up here as well. Can't wait to see them. I was a little bummed when I heard they will be leaving CJ and Lorali at their grandmas ... I was looking forward to getting to hold them :/ But I understand. So if anyone would like to donate their babies for Mommy Therapy so I can hold and love on them, I would love it :D

Thank you, as always, for following us on this God led journey and for continuing the prayers for Noah's recovery.
Friday, November 5, 2010
URGENT!!!!!!!!! NOAH IS BEING CUT OPEN!!!!!!!!!! WE DON'T KNOW WHAT IS GOING ON. HIS HEARTRATE DROPPED AND BP DROPPED. THEY WERE DOING COMPRESSIONS. PLEASE PRAY!

UPDATE: THEY HAVE CUT HIM OPEN RIGHT THERE IN HIS ROOM. THEY ARE PUTTING HIM ON THE ECMO MACHINE (basically bypass) WE STILL DO NOT WHAT CAUSED HIM TO GO INTO DISSTRESS.


UPDATE: One person is doing compressions directly on his heart, one is bagging him to give him O2 to his body and his brain, and Dr. Mitchel is hooking up the canulas from the ECMO to his heart. **I am udating my status for now. when everything is done, I will do one big update on the blog** Please share this info.

UPDATE: One person is doing compressions directly on his heart, one is bagging him to give him O2 to his body and his brain, and Dr. Mitchel is hooking up the canulas from the ECMO to his heart. **I am udating my status for now. when everything is done, I will do one big update on the blog** Please share this info. ALSO: They will not know how his brain was effected until a day or 2 from now. So please pray that we still have the same Noah when he is healed!

UPDATE: Noah is now on ECMO, and is stabilized. The ECMO is doing most of the pumping, allowing his heart to relax, and they have added a pacer to establish the proper rhythm so that the muscle gets used to contracting. Noah received compressions and bagging for over an hour. Because of this, there is a risk of stroke and organ deprivation. They are doing an echo now to confirm the VSD is still intact, and will do tests tomorrow to verify the brain function. We wont know for certain until Noah wakes up whether brain function is ok, but Dr. Mitchell spoke with us, and was extremely optimistic about Noah's prognosis. Please pray that Noah's brain and organs are ok. We are belieiving that God wants Noah to tell us his story some day! Tonight there will be a nurse in the room constantly to monitor Noah's condition, and there will be a constant rotation of techs for the ECMO machine until he is off it. Dr. Mitchell's opinion was that when they were doing suction to clear Noah's lungs the new pulmonary artery clamped down, making the back pressure on his right ventricle very high. Since up to this point the right ventricle has not had to function on its own (due to the VSD) it was a shock, and the RV slowed and lost pressure.

A BIG scare........

We just had a scare about 30 minutes ago. After they had turned off his paralytic, his temperature started climbing, his heart rate climbed, and his blood pressure started dropping. They a whole bunch of doctors came rushing in. They had restarted the paralytic and gave him a bolus of a blood product to help lower his heart rate which was in the 190's. They stood around him to watch how his numbers reacted. His blood pressure kept falling (40s/30s) and his heart rate started dropping quickly. A crash cart was brought in and a whole lot of other doctors and nurses. They had to do chest compressions for about 45 seconds. They turned his milrinon (a heart function med) back up and then he became stable again. They are keeping a close watch on him today. They are letting him recover from this traumatic episode and will not be weening anything today, so he is back to his original med settings and his cooling blanket has been turned back on. If he does good over night, they may possible turn off his paralytic tomorrow. Please continue to pray for Noah's recovery. Even though Noah did extremely well during his surgery, his repair was very complicated and is going to need more time to recover. Needless to say, Aaron and I will not be venturing out anytime soon. Noah is proving, once again, that he likes to do things on his own timing and does not like to be pushed.

12 hours post-op

Noah is doing great! He had a little bleeding last night when he came back from surgery... there are some small residual holes around the VSD patch that will eventually close on their own in a couple of days. The bleeding has slowed down and is starting to clear up. I am amazed at how well he looks this morning... For being in the OR for 12 hours yesterday, he should be VERY swollen, but he is not. Just a little puffy is all. They have already turned off his paralytic drip so by the end of today he should be able to move a little bit. He is on all the heart function meds until they are for certain his heart is doing well on its own. He has a fever but that is expected so they are giving him Tylenol and they have him on a cooling blanket.
Aaron and I did not go to sleep until around 1am and then had to wake up at 4am for x-ray. We are still tired and are trying to sleep but it is hard to. The hospital air is so dry that both Aaron and I woke up with dry lungs. We are going to go to the mall later after lunch to go to Build-A-Bear to make Noah the Heart Patch Bear! We are going to call him patches and give him a "stuff-day" of November 4, 2010! :)

About Me

My photo
Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Photobucket
Photobucket
Photobucket

He is getting so BIG!!!!

He is getting so BIG!!!!
Getting a short break from his O2 :)

Grab Our Button!

Photobucket

My handsome men!

My handsome men!
Powered by Blogger.

Me and my boy :)

Me and my boy :)

Dec. 6, 2010

Dec. 6, 2010
I got to hold Noah!!

Followers

Blog Design By

Photobucket

Blog Archive