Monday, November 21, 2011

First heart cath since December 2010....

11:30am - They took our sweet boy down to the cath lab. He got a generous dose of versed just before they took him through the doors. Funny how quickly those meds work!

1:20pm - First update: Intubation went very smoothly and he is breathing comfortably on the machine. They were able to get access through his subclavian!!! THANK YOU JESUS! They are now beginning to take pressure measurements and are going to test his lungs with nitric oxide, which is a vaso dilator, to see if his body is responsive and it will help with the pressures in his heart and lungs. Then they will test him with Sildenaifal to see if this will also benefit his heart and lungs.

1:50pm - They JUST finished the procedure! God is amazing and faithful! Noah did very well through the whole procedure and was stable throughout! They are now doing an ECHO while he is still sedated and then he will be brought back up to his room to recover! Now we are just waiting for the doctor to come up and talk to us about the results! Thank you Jesus for answered prayers!

Dr Gudaunsky, the heart cath doctor, said that the residual VSD is "significantly smaller that it was a year ago" and that he has "absolutely no pulmonary hypertension" PRAISE GOD!!!!!!!!!!!!!! His pressures in his heart are balanced beautifully and, in Dr G's words, "his heart is in the BEST condition it has EVER been!" AMEN!! He did say that his left pulmonary artery is a little narrower but not to the point of doing anything to it right now. They will talk to his cardiologist and see what she thinks would be the best approach to correcting it. But for now, he can go home and stay home for a while with no "planned admissions".

About 4 hours after Noah came back to his room, his nurse and I noticed his lower abdomen was distended and hard. It was concerning because when they put the arterial line in his groin, they had to go in a little higher than normal and that increases risks of bleeding into his body cavity... the main reason they are keeping him sedated and still until 6 hours after the cath was done. We had the ICU doctor come in and take a look at him and he said that it could be his bladder and told the nurse to straight cath him to see if he had urine. He said that if we didn't get any urine, then he would want a CT done. But, God answered our prayer again, and it was just his very full bladder. The nurse was able to get a little more than 100cc's out with the straight cath and about an hour later he peed on his own.

9:15pm - His sedation drip is now off and he is already trying to sit up. My boy is such a fighter! They will let him wake up more and at midnight they are going to start a pedialyte drip over night and then give him his first feed in the morning. We possibly could go home tomorrow, if not, Wednesday!!! In time for Thanksgiving!!

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3 comments:

Anonymous said...

Hi Debi, Aaron and Big Boy Noah! You don't know me, but I know all about you guys. I work everyday with grandpa Neil. He is a very proud grandpa and worries every day for you guys. I was happy to hear that today was a success and the Dr. did not have to go in through the liver. I am happy to hear you will be going home in time for Thanksgiving also. Take care of yourselves and stay strong. Have a happy and "healthy" Thanksgiving. You all deserve some time to celebrate and be happy. Sincerely, Samantha Dixon and Family.

A. Beaulieu said...

AMAZING!!!!! Wow...Amazing what can happen in a year, and how things change. You guys are the strongest parents EVER!! Happy Thanksgiving to you and your family.

Katherine Fishburn Miller said...

Praise God!

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Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
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He is getting so BIG!!!!
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