Once again, Noah landed himself in the ICU for a few days. This past Thursday, he had a scheduled MRI as a follow up from his previous MRI back in December. We have not received the results yet, but this appointment triggered another vomiting episode. Although he is not "officially" diagnosed yet, they believe he has cyclic vomiting syndrome (CVS).

This month has been extremely stressful on Noah. He has had many tests and appointments this month and the traveling and changing of his routine and feed schedule has taken a toll on him. We are trying to find the right combination of meds/routines to help Noah with his CVS. Trying to eliminate the triggers as much as we can. Trying to find what works with his body as far as preventing another CVS episode or to lessen the severity of it. It is extremely difficult. It is very draining on Aaron and I, not to mention, Noah!

When we got admitted early morning on Friday, I knew Noah needed IV fluids. But with his IV access being impossible, I requested they not try for the IV and just go ahead and put a PICC line in. So, around 2:30 that afternoon, he went down to IR and had his PICC placed. They gave him Versed through the nose to calm his nerves and once he was in IR, they gave him an IM shot of Ketamine to sedate him. However, he had a delayed reaction to the Ketamine, so they gave him a second dose. When he came back to his room, he was still out and did not FULLY wake up until around 10 am Saturday morning!

They started him on a D10 drip (basically a sugar drip) and a few bolus' of saline fluids. The D10 was started to boost his sugar level... he was at 45. They also use D10 as a rescue fluid for patients with CVS. I think this will be one of our tricks for when he gets into one of his episodes.. giving his juice instead of just pedialyte.

So, anyway, Noah is being discharged today. He will be getting a dose of IV Zofran and then the PICC will be pulled. I can not wait to get home!