Wednesday, March 9, 2011
update from home
Noah has been home for 2 weeks already! He is doing great and starting to get back to all his normal, silly, mischief making activities. We are still dealing with him vomiting more than usual, but they are not concerned unless he is loosing wight. He is still gaining which is great! We are just going to have to deal with the vomiting for a while.
His speech is coming back... he now says 'mom mom' all day and recently has started saying babababa again. Today was even the first time since before his surgery that he has eaten anything by mouth. It came out of the blue, too. He saw me eating a peanut butter sandwich and seemed really interested so I put it up to his mouth and he actually tasted it! Then for dinner we were having fettuccine alfredo and I mashed up some noodles and added a little more cream cheese and he LOVED it! I am so proud of him! I was really worried it would take a very long time to get him to take ANYTHING by mouth. Praise God for taking away my worries!
Noah is now getting his PT and Speech therapy once a week as well as his home care nursing. So far he is doing great with them.
His speech is coming back... he now says 'mom mom' all day and recently has started saying babababa again. Today was even the first time since before his surgery that he has eaten anything by mouth. It came out of the blue, too. He saw me eating a peanut butter sandwich and seemed really interested so I put it up to his mouth and he actually tasted it! Then for dinner we were having fettuccine alfredo and I mashed up some noodles and added a little more cream cheese and he LOVED it! I am so proud of him! I was really worried it would take a very long time to get him to take ANYTHING by mouth. Praise God for taking away my worries!
Noah is now getting his PT and Speech therapy once a week as well as his home care nursing. So far he is doing great with them.
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About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Click on a link below to learn more.
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
He is getting so BIG!!!!
Getting a short break from his O2 :)
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My handsome men!
Me and my boy :)
Dec. 6, 2010
I got to hold Noah!!
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4 comments:
I am so happy Noah continues to improve and impress. He has such a captivating personality, I can only imagine how much more so that must be true in real life, what a blessing he is.
-Shelly (BG)
I am so happy for all of you. Praise the Lord!!!! Noah sounds like he is doing so much better. There is just nothing like being at home with Mom and Dad to help speed recovery =)
Hi Noah
My name is Jenna and i came across your site. U are a brave courageous fighter and a hero. U will be in my thoughts and prayers. You are full of love, smiles, laughs, hugs, cuddles, courage, fight, bravery, and determination. I was born with a rare life threatening disease, and I have been diagnosed with 12 more illnesses. My site: http://www.miraclechamp.webs.com I love it when others sign my guestbook or email me.
Hello all of you, keep looking upward. I have experienced the Lords love and healing power in sickness, sometimes being told that His grace is sufficient for me, but also experiencing his miraculoous power. I will pray for Noah to receive that miraculous power too. My site is www.lighthousevision.blogspot.com May the Lord Jesus bless you. Brenda x