Tuesday, December 21, 2010
4 days post-op...
Noah is doing good as far as numbers go. He is still one of the sickest kids on the unit but he is making slow progress. Today they have weaned his Fentanyl and Versed a little. I don't know if he is liking the change though, he has been thrashing around and grinding his teeth a lot today. I hurts to watch him like this. I feel helpless. I can not wait until this is all in the past and I can look back at it with distant memories. Right now, in the moment, this seams surreal to think about. Some days I feel like it is never going to end... like the pain is always going to be there. It is hard to picture him being a normal toddler getting into things and being naughty. I can't wait for that!
Lately I have been feeling like this hospital stay is going to be our longest one yet. Only 20 more days and this WILL be the longest stay. ::sigh:: :/ WE WILL GET THROUGH THIS!
I think I need to end the update for now... otherwise it will end up as a rambling.
Lately I have been feeling like this hospital stay is going to be our longest one yet. Only 20 more days and this WILL be the longest stay. ::sigh:: :/ WE WILL GET THROUGH THIS!
I think I need to end the update for now... otherwise it will end up as a rambling.
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About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Click on a link below to learn more.
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
He is getting so BIG!!!!
Getting a short break from his O2 :)
Grab Our Button!
My handsome men!
Me and my boy :)
Dec. 6, 2010
I got to hold Noah!!
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3 comments:
Oh Debi I am so sorry that he is struggling and you feel helpless! Just remember to lean on the Father in Heaven and He will help you! I wish I could take your pain away...I wish I could take Noah's pain away! Lord, I pray that you will be ever present in Noah's life and show his parents your loving compassion! I lift them up to you now and ever more. In Christ name Amen!
I am reminded of the footprints in the sand. There were two pairs, then one pair, and then two again. Where there was one pair, God picked up the one in need, and carried them, as he is carrying all of you right now. Love you all, aunt karen
Debi, you are getting a glimpse of what our Father felt watching Jesus...only He understands, so draw close to Him and remember the darkness comes before the dawn. I'm praying you'll have lots of "naughty Noah" moments in your future!