Tuesday, November 23, 2010
Yesterday had been a great day, but towards the evening and all through the night was really rough. Noah is going through withdrawal and it is making him extremely uncomfortable. His renals were low and his blood pressure and heart rate were high. We also had to turn off his feeds for a few hours because he started backing up and had bilious coming out of his g-tube. He had pooped a lot yesterday but was having a hard time with it because he kept bearing down a lot during the night. Then around 5 this morning, we had given him a dose of Benadryl because itchiness is a side effect of all the narcotics he is on. After that dose he calmed down and slept for about 2 1/2 hours.
So... During rounds this morning, they talked about his night and all the things they tried to help him. He now has Benadryl as a PRN and they are starting methadone to help with coming off the other sedation meds. His feeds are back on but still at a rate of 6cc's an hour. He seems a little better this morning than last night so please pray that this continues in the right direction. His lipids are going to be run in a 12 hour period so he can get the fats he needs.
Prayer list:
Noah's withdrawals to subside.
His renal function to improve and his blood pressure to normalize.
His fever to go away.
His liver to go down and his belly to become less bloated.
His gut to wake up more and start digesting his feeds.
That he can come off the sedation drugs quicker without being uncomfortable.
For Aaron and I to feel confident in Noah's care from the nurses and doctors. And for us to feel comfortable going home this Thursday for Thanksgiving with the family.
For our family, that they will be comforted when they can not be here with us everyday.
Thank you
So... During rounds this morning, they talked about his night and all the things they tried to help him. He now has Benadryl as a PRN and they are starting methadone to help with coming off the other sedation meds. His feeds are back on but still at a rate of 6cc's an hour. He seems a little better this morning than last night so please pray that this continues in the right direction. His lipids are going to be run in a 12 hour period so he can get the fats he needs.
Prayer list:
Noah's withdrawals to subside.
His renal function to improve and his blood pressure to normalize.
His fever to go away.
His liver to go down and his belly to become less bloated.
His gut to wake up more and start digesting his feeds.
That he can come off the sedation drugs quicker without being uncomfortable.
For Aaron and I to feel confident in Noah's care from the nurses and doctors. And for us to feel comfortable going home this Thursday for Thanksgiving with the family.
For our family, that they will be comforted when they can not be here with us everyday.
Thank you
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About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
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- Things look promising...
- Round 1....
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- Happy Thanksgiving (a couple days late) EVERYONE!!...
- Right this moment, Noah is getting an ultrasound d...
- Rough seas ahead...
- Yesterday had been a great day, but towards the ev...
- Noah has pooped TWICE today!!!!!!!!!!!!!! This is ...
- Today, they are not going to change much on his dr...
- Extra, extra!! Read all about it!! There's GOOD NE...
- Noah's chest has been closed for 24 hours now! PRA...
- Noah's chest is closed!!!!They took him down to th...
- The Silver Lining....
- Still need focused prayers on Noah's kidneys and b...
- There was no update yesterday because things are p...
- Psalm 41:1 The LORD sustains him on his sickbed; i...
- Today, they did a short trial run of turning down ...
- For those who have been asking.....
- Noah had a relatively good day today. His ECMO dre...
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- A BIG scare........
- 12 hours post-op
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He is getting so BIG!!!!
My handsome men!
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1 comments:
Saying a payer for you guys! :)
Martha