Thursday, May 13, 2010
The good and the bad.
Today has been a good day and a not so good day.
Good: Noah is back on his full feeds today and for the first time.... he took all three feeds today BY MOUTH!!! I did not have to put any of it through his tube! YAY!!! AND he did this while he is still not feeling 100%! I am so proud of him!
Bad: Noah's fluoroscopy showed narrowing in his trachea. This could be inflamation due to the paraflu or it could mean that some sutures from the airway surgery he had done back in January have broken from all the hard coughing he has been doing. Their plan for him is to wait out the virus over the weekend and possibly do a broncoscopy on Monday to determin if they should re-do the surgery. I am really nervous. His breathing has gotten a little worse the past two days. Doesn't he know that his FIRST BIRTHDAY is NEXT MONTH?!?!?! He sure knows how to make me jump through hoops!
Anyway.. sorry for the short update.. I am exhausted from lack of sleep and I can't remember eveerything from today. I should start writing notes through out the day ;) lol Good Night!
Good: Noah is back on his full feeds today and for the first time.... he took all three feeds today BY MOUTH!!! I did not have to put any of it through his tube! YAY!!! AND he did this while he is still not feeling 100%! I am so proud of him!
Bad: Noah's fluoroscopy showed narrowing in his trachea. This could be inflamation due to the paraflu or it could mean that some sutures from the airway surgery he had done back in January have broken from all the hard coughing he has been doing. Their plan for him is to wait out the virus over the weekend and possibly do a broncoscopy on Monday to determin if they should re-do the surgery. I am really nervous. His breathing has gotten a little worse the past two days. Doesn't he know that his FIRST BIRTHDAY is NEXT MONTH?!?!?! He sure knows how to make me jump through hoops!
Anyway.. sorry for the short update.. I am exhausted from lack of sleep and I can't remember eveerything from today. I should start writing notes through out the day ;) lol Good Night!
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About Me
- Pray For Baby Noah
- Welcome to Noah's blog! We thank you for following us on our God-led journey and thank you for all your thoughts and prayers! Noah was born June 22, 2009 with many anatomical birth defects and underwent his first major surgery when he was just 4 days old. He has been in and out of the hospital since day one and has had a total of 4 major surgeries to date, with his latest one being the most extreme and difficult - his first open heart surgery on November 4 and December 17th, 2010. He is a warrior and this is his journey...
Click on a link below to learn more.
Double Outlet Right Ventricle Tracheoesophageal Fistula Scimitar Syndrome Dextrocardia
He is getting so BIG!!!!
Getting a short break from his O2 :)
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My handsome men!
Me and my boy :)
Dec. 6, 2010
I got to hold Noah!!
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2 comments:
Yay Noah on taking all your feeds by mouth. I am SO Proud of you too. Miss You LOTS and Love You. You are in Our Prayers ALWAYS.
I’ve tried all sorts of coughing syrups, believe me, but none of them helps. Even though Nin Jiom Pei Pa Koa www.geocities.jp/ninjiom_hong_kong/index_e.htm does not eliminates the cough I like to stick to this chinese syrup I’ve been taking since I was a kid: Nin Jiom Pei Pa Koa. My grandfather is chinese, so I guess my mom got the advice from him. I was really surprised when I found that chinese market selling it here in Belgium. It does have a refreshing, soothing, sweetening effect…as long as it lasts…then back to coughing mode.